9 mini oreos- 1/4 of the way to the end! OIT with Xolair/Omalizumab part 3.

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                                                            daily dose.

“They taste just like my oreos.”  The wait is over however the excitement is still fresh —9 mini Oreos is the wheat portion of the current daily dose along with 1/2 a Nature Valley granola bar AND 4 cookies made with rye and barley flour.  The gluten free boy is up to 4000 milligrams  (1 gram each) of wheat, oat, barley and rye flour consumed each day without incident.  He had an anaphylactic reaction to just 80 milligrams of wheat flour back in July—today he eats 1000 milligrams!

The surreal nature of watching him open the bag of mini oreos and pop them one by one into his mouth is something I am definitely not entirely comfortable with.  We are out of the country on vacation now—the combination of the daily gluten dose and trusting someone to prepare his meals takes a giant leap of faith-- both in the person making the meals and in the allergy study which he is participating.  Last night while playing basketball  (2 hours after the dose) he started to wheeze a bit and sneeze.  He was able to monitor himself and he was fine without antihistamine.

Two more vacation meals and two more vacations doses then we will be home.  Next week the plan is to bring him to 5800 milligrams combined of all four allergens-technically unless I get more creative-this will mean he will eat 13.5 mini oreos, 3/4 of a granola bar and 6 chocolate chip cookies.  Until the next updose…


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serious stuff- hooked up to blood pressure and pulse-ox machines to eat an oreo!

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One Response to 9 mini oreos- 1/4 of the way to the end! OIT with Xolair/Omalizumab part 3.

  1. Wruckstar says:

    While I’m sorry to read that someone else has had an anaphylactic response to wheat, I’m also, selfishly, a bit relieved. I have the same reaction and I’ve never heard of anyone else having this reaction. I figured I wasn’t the only one, but I find that reading that someone else really exists with this same malady is strangely comforting.

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